I am trying NOT to scratch my arms. I have a chronic condition called Brachioradial Pruritus which is fancy Doctor talk for “itchy arms”… intensely itchy, drive me crazy itchy. The itch is a prickly, burning sensation that cannot be scratched to relief. I have learnt that scratching actually makes it worse and my only relief is from applying ice.
The first time I felt this itch was the night I got a severe electric shock. I was in Mexico and cooking on a hot plate. I was thrown backwards and very traumatized from it. That night the itching began. I did not connect the two at the time, but now I wonder.
Many sources believe that Brachioradial Pruritus or simply BRP may be caused by nerve damage in the upper spine, specifically the C5-C6 vertebrae. This is where the nerves that run down the outer arm come through. Did I injure my spine when the shock threw me backwards? It is possible.
The other theory is sun damage. I live in Canada and have never been a sun worshiper, I have very fair skin and burn easily so I always take precautions. I have only recently started going south in the winter and take great care not to get burned. If this theory is correct, I wonder why only the arms are affected and not my face or legs since, when I am in the sun, I am usually wearing shorts or a bathing suit. But I guess, given my fair skin and the fact that I have started to travel, it is possible.
My regular Doctor at first thought I had Scabies. I had just returned from Mexico where the itching began. We treated my poor body for these ugly bugs and nothing changed, in fact I was desperate and showered and scrubbed myself again with the anti-scabies treatment. Thinking I was covered in bugs, I washed every article of clothing, every sheet and towel in hot water trying to eliminate the creepy mites. When nothing changed I was glad I didn’t have scabies but, in retrospect, I wish the cure was that simple.
I went to the internet. (Isn’t Google great?) I typed in “Itchy arms” and found out about BRP. Armed with this info, I informed my Doc, who had never heard of it. He Checked into it and referred me to a dermatologist who simply confirmed my diagnosis and said there is nothing he could do and offered suggestions for creams. Cortisone cream offers some relief but is bad for my skin so I won’t use it.
Whatever the cause, I want a cure. not just a band-aid!
This is what I have tried so far and how I am trying to cope:
- I use ice-packs to calm the itch. Cold is the most effective relief.
- I see my GP regularly. All he can do is give me drugs to numb the itch. I take Hydroxyzine 25 mg a few times a week. He advised against using the drug every night.
- I have seen a dermatologist who confirmed that I have Brachioradial Pruritus and that there is nothing he can do.
- I have been to a chiropractor who brought me some short term, temporary relief.
- I have seen a Naturopath who suggested Shea butter, which is great for moisturizing, I guess, but rather greasy. It didn’t affect the itching.
- Creams feel good going on because I am rubbing my arms and for me, I have found that Aveeno Eczema Care for babies works best.
- I am trying to stay hydrated by drinking lots of water.
- I complain and whine… but it does not change a thing.
I have to constantly remind myself that this is not life-threatening or contagious. I remind myself that things could be worse, much worse.
Yet, I can’t think about how lucky I am when I am up at 3 am, tired and alone in the dark and intensely itchy. With only bad late-night TV shows for company, I am often crying as I shiver with cold packs on my arms. I am desperate for relief and feel like ripping the skin from my arms. Anxiety mounts and the tears flow as I move the cold pack from one itchy spot to another for hours on end. I can’t help but think of the people who have suffered for 5 years, or 10 years and sometimes more. These thoughts really scare me.
If you suffer, or have any ideas to help me, please tell me. I would love to hear your story.
Feeling sad for you, Maggie! Wish I could offer a possible solution to your discomfort, but I have no idea what to suggest. I’m a great believer in the healing properties of aloe vera for skin irritations, but it sounds like your condition is likely beyond its capability. 😦
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I have tried aloe vera, I do use it, it feels cool going on and that helps, but it does nothing for the itch because the itch is a nerve thing. The main time of itching is in the night. As long as I am active and moving, I don’t have any itch, its just once I settle for the evening, that’s when it starts. So life is great in the daytime.
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Hi Maggie, I’ve had this condition for at least 15-20 years, I’m 64. I do have pinched nerves in my neck, so I know the cause. I have my itching day and night in both arms, so I feel your pain. I just read that Lidocaine 5% patches put on arms and shoulders for 12 hours helps all night and relief carries on to the next day. I’m sure it’s by RX only? I’ll ask my doctor soon, have you ever tried this? So, my only relief is ice, but that’s difficult when I’m out and about during the day. Good luck to you.
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I am managing with the ice packs and often carry a cooler with me in the car. It is weird when I am out to have to use ice packs in public. I was on a plane recently and had to ask for ice, I think the young fellow next to me thought I was some weirdo…
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You can but asper cream with 5% lidocaine in it.. I have started using it. And what a difference..
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Hi, thanks, but my pharmacist said only 4% unless I have an RX. Are you in the USA?
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Yes, the lidoderm patches are my answer too!
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I think this must be what i have. i got really sunburned on a kayak trip and it has been itching terribly on just my forearms. This happened in the last couple months so its new to me.
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Use cold (not frozen) gel ice packs, but be careful, sometimes I think my skin is now damaged from the cold… like frostbite perhaps. such a viscous circle. I sure hope they find it is related to your sunburn and not nerve damage, and your skin will heal itself.
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Bless you. I take 400mg of Gabapentin 3 times a day. It’s the only thing besides ice that helps. I know those crying late nights. Peace to you. Gina
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Oh Maggie when I read this story I had tears because I know what it is like to suffer with a chronic condition. I have been left with debilitating nerve pain after some serious complications during surgery. I have only been able to manage the pain with medication and oodles of cognitive practice as well. It has been almost four years now and I am developing additional chronic issues one of them being itchy arms, my doctors are still diagnosing but BRP has been the condition they keep discussing with me. I have a referral to see a skin specialist and will know for certain if I have BRP once I see him, it may just be my medications. The itching is driving me crazy, in addition to my pain I have just about had enough, reading all your quotes posted with this story has made me adjust my thoughts again. I am not helping you out here because I haven’t a clue what to do, but my thoughts are with you and anything I learn as I go through these tests that could possibly help you I will forward on. Tears are most definitely a cleanser every now and then, I can’t understand I could have so much pain from nerve damage, and to be told I must live with it for the rest of my life is hard to swallow. I really do understand all the emotions you are experiencing from enduring a chronic condition. Chronic is not my favourite word, I will save these little quotes, they are all filled with strength, strength to you Maggie and hugs from
Annie in Australia 🌞 🌴 🌊
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Oh Annie, I am so sorry. I really hope and pray that they find some other reason for the itching for you. Chronic pain is more than enough to endure. Whatever you do, don’t scratch. apparently (so I have read) constant scratching will eventually enlarge the nerve endings and make the itching worse. I don’t want to test that theory, so I use cold gel packs. they really give the best relief (I have four that I keep in the fridge not the freezer)
I know what you mean about thinking about enduring for the rest of your life… that is such a bleak sentence… surely they will come up with a cure for all this torture we have been dealt.
I am glad you like the quotes. I love finding quotes and putting them on my own backgrounds.
Hugs to you.
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I have just literally started with this. Tingling all the tine but the electric shocks of itchiness are intermittent. I am dreading it getting worse.
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I do hope u get well soon
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Thank you
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Maggie, I found this website while looking for natural cures. http://gerson.org/gerpress/8-natural-remedies-for-itchy-and-irritated-skin/ I’m a big fan of apple cider vinegar so I’d probably try that one. Have you? I’m sorry to hear about your chronic itching. P.S. I LOVE the title of this post!
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Thank you… I will check this out.. I have not tried apple cider vinegar, I will head out to the health food store in the morning.
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I use it for several things. How’d you make out? Maybe too soon to tell. Things tend to take multiple attempts.
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Check out this Facebook page. https://www.facebook.com/notes/angelina-liana-pierce/home-remedy-for-brachioradial-pruritus/10152481935936946/
I suffer too and I’m going to make this concoction and try it out!
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Thank you, I will be giving this a try…
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Hi Maggie, I’ve been dealing with this condition 20 years.. it’s awful and I’ve been to so many dermatologists and same thing just steroids that I used way to much and honestly they temporarily work but ruin your skin. Ice packs def work but I’ve just started seeing a neurologist that’s been prescribing a compound cream made up of Gabapentin/ lidocaine/ ketamine/amitriptaline. This cream has changed my life and def def staying out of the sun completely. I wear sunscreen everyday and throw a light top over my arms even in the summer if I’m directly in the sun. See a Neurologist! P.s this started on my left arm at 22 years old for no reason at all than spread from just the top area down to my forearm than my right arm same areas. Sometimes back of my shoulder blades too. I wish you the best!
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Glad you are getting some relief… such a debilitating and annoying condition.
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Lillian can you advise the percentage of each ingredient in the Gabapentin/ lidocaine/ketamine/amitriptaline compound cream so I can ask my doctor for it?
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Maureeen I just seen this I’m so sorry!! I’m waiting for my new prescription to come in the mail, as soon as it does I will get back to you to be sure:) it should be Friday!
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Thanks, Lillian, I appreciate it!
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I’m so happy to find this blog. I have suffered with this for over a year. I believe much is stress related since there was a point last summer when the symptoms had completely vanished. Once I went back to work, it got worse than ever. I take a lot of gabapentin which helps, but not always. I have scars all over my arms and have had itching on my chest And legs. i have had injections, physical therapy, and chiropractic. Nothing works for long.
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So I have not officially been diagnosed with BRP…but I have diagnosed myself!! This itch is insane!! I talked to my doctor and she tried to tell me to use Allegra or anti itch cream.I knew that wouldn’t help, and it didn’t. The only thing that relieves the itch is ice!! Sometimes I wish I could just cut my arm offor at the elbow!! I only have it on my left arm from elbow to wrist..it literally drives me nuts trying not to scratch! I really wish they would find a cure!! Don’t know why or how it started, but I pray to God he takes it away!! Good luck and hopefully one day soon they will find a cure!
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I came up with this idea on my own and have not seen anybody else on the internet talking about this: I keep a small refrigerated jar of 100% habanero juice (from the juicer preserved with a drop of glycerin). When the acute itching breaks out, soak a soft rag with habanero juice and rub itchy area for up to a minute to deeply penetrate the external layer of skin. It immediately stops the itch from getting worse and provides an incentive to stop scratching. Then the itch fades within 10-15 minutes and doesn’t come back for awhile. I think BRP is caused by an internal yeast infection which breaks out through the skin and habanero kills the fungus. I also started doing an internal 3 week echinacea/goldenseal cleanse every 4 months several years ago for prevention and 90% of my chronic skin problems, including BRP, cleared up. Now the BRP breakout events only occur several months after the cleanse when the yeast comes back.
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Maggie, I find that, though not a cure. the cream Voltarin works well (avail in Canada) as well over top I use a spf 50 sunblock on the spot ( note is must be mineral, like used for babies).I have to take some various medications and am looking into whether they have an effect. Pepper creams using capsasiun (sp) work as a counter irritant and do help but so far I find the Voltarin not bad. sorry for rambling but a compounding pharmacy can makes up cream for shingles and they can work too but are frightfully expensive. It’s a lousy condition I hope we all find an answer.
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Oh my gosh! I have going through this severe debilitating condition since 2006, after going through pigment skin loss for 25 years (now 36 years). It was just one thing after the next! Loss of pigment, chronic fatigue syndrome-CURED, fibromyalgis-CURED) and now this very annoying “itch” and “pain” and “nervousness” that makes me want to lay down and die at times, although I know I won’t because Jesus keeps bringing me out of it. Once it was SO severe I DID think I was going to die!!! Itching, burning, pain, redness on both arms and shoulders up and down after being out in the Florida sun for a day, not directly exposed, but being at the beach which I cannot do since I have NO pigment, but it triggered an onset of this I DID think I was going to die, I was very sick, and I could feel the pain inside of me as well. It feels like aunts biting you and swords going through you, no other way to describe it, no one know until you have it. I researched EVERYTHING, cause and treatment, I have been practicing holistic medicine and living for years. Needless to say, I use camphor and menthol oil and I have increased the essential oils I use, a combination of several including lavender and frankincense, chamomile and more. I have been able to ward this off for a couple of years-HALLELUIA!- but now I have an attack again, I thought I had beat it, but I live in Florida and I have been outside a lot this year first putting in our own sod (at 66 years old!) picking it up and laying it in the very hot sun! Then I went on to work outside, not in direct sunlight, but just out in the yard which I hadn’t been able to do for many years. Then I painted my bedroom and bathroom and refinished some furniture and that is when it started again (I refuse to call it what it is!!!) I am on an onslot of herbs and vitamins again, plus all the oils and baths, (only had to use the ice packs once for a short time to get some relief) and I am trying BUSPAR again, it is a non addictive serotonin receptor inhibitor (serotonin causes itching) so I will see with that one, it does to help a bit, I am leary of ANY chemical medicines, but if I do not see any side effects, I will keep trying it. ALSO, when it it SO BAD and I WANT TO DIE, I have to use BIRCH TAR, but you cannot go anywhere near anyone in public with it on your skin, and it doesn’t wash off, because they think their building is burning down! I have had to run out of stores many times!! I also use LIDOCAINE when I absolutely an at my whits end, I have a strong solution before they took it off the market, but I do not like to use it because it is only temporary where the natural remedies will respond to your body to get it back into balance. THE GOOD NEWS!!! JOY WILL COME IN THE MORNING AND SOON IT WILL BE GONE AGAIN!!!!! GOD BLESS
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Wow you have been through a lot. All I ever need is the cold jell pack
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I keep them in the fridge not the freezer… Often using a thin cloth barrier to protect my skin. No more chemicals needed. From what I can determine, our nerves only react to one sensation at a time, so when they feel the cold, they stop reacting to the itch. For me this last for quite a while, often several hours, I love that relief.
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PS I have tried both cider and white vinegar, habenero tincture I made myself, capsicum, ginger oil, a number of other tinctures, the stimulants make it far worse, so does steroids–a steroid shot sent me through the walls!!!
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I’ve been itching for 40 years. My mother itched before me. There has been ZERO progress in figuring out what this is. It’s eczema or dermatitis or some other thing that means “itchy rash” on some part of you for no apparent reason. I don’t think they are looking for a cure because they make a lot more money selling us patent nostrums that don’t actually do anything.
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The only thing that helps is cold. I use gel packs only, no drugs help. Its horrid.
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I haven’t visited this page for about two years. I had many months of relief on and off, but it’s back again worse than ever. Right arm, shoulder to wrist. Now it’s even started on my right leg, thigh to ankle. I have an appt with my neurologist in three weeks (waited 3 months to see him). He’s same doctor I saw ten years ago for,this issue and he thought problem was from my cervical vertebrae damage. I managed for a while on Lyrica and the problem disappeared for a bit. That was ten years ago. Now I read that 50 mg of Lyrica once a day will cost me almost $450 a month. Can’t do it. All the creams mentioned have been tried and failed. I hope he has a suggestion. Ice packs are a daily thing now, so is being awoken many times a night itching. Good luck to all.
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I have also tried every cream and all are just a waste of money. From all I read, a damaged nerve seems to make the most sense as a cause, and unfortunately cannot be fixed. I have been having some success with a cold shower before bed.
I am still seeking a cure not a band-aid!
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Hi Maggie, I have herniated discs & nerve impingements in both my cervical and brachial plexus. So I at least have comfort in knowing the cause of my BRP. Here are a few thoughts… I assume that you have already tried Gabapentin and pregabalin as well as SSRIs. Have you tried a compounded mixture of amitriptyline hydrochloride 1.0%, ketamine hydrochloride 0.5%, and Vanicream applied 2-3 times daily? Or injections of botulinum toxin A (100 IU/3 mL saline)? Aprepitant, [Emend] a neurokinin-1 receptor inhibitor, is the latest treatment I am aware of. If you have tried all of these see your GP to rule out underlying systemic diseases such as hodgkin’s lymphoma. Lastly, here is a link to an article on BRP in the New England Journal of Medicine that may be helpful. By the way, just because I can name my culprit relief is not and never will be constant. Take care, Ross (I love your blog title)
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Thanks for the info, I have not had any injections or the last one you mentioned, I will be taking this info to my doc. And checking out that article.
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Hi Maggie, I realized this morning that I didn’t give you the link to the article in the NEJM! Here it is: http://www.nejm.org/doi/full/10.1056/NEJMcp1208814
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Thanks
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Thanks, I can use this also, just read it all and saved. I know my cause is cervixal spine and lumbar spine nerve entrapment. Just don’t know what can be done. Take care.
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Still wanting a cure..
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Hi Maggie,
My heart bleeds for you because I know exactly what you are going through. About 6 weeks back I had shoulder surgery to repair a badly damaged rotator cuff in my right shoulder. I spent 4 weeks at home recuperating and it was during this time I developed the most unbearable itch on both my arms, from the shoulders down. The itch is worse at night and gets to the point where I get a burning sensation in both arms and have to get out of bed (or risk being booted out by the missus). Although I suspect some nerve damage occurred during my surgery, resulting in the itch, the doctors vehemently deny this.
It is now 2.40 am and I am sitting outside on our deck with a cup of tea, writing this after reading your post. Like you, I have consulted so-called specialists and got mostly blank stares. And, like you, I have found the only thing that helps is applying cold gel packs to my arms. When I am up and about, the itch subsides. But staying awake 24/7 for the rest of my days is a prospect too ghastly to contemplate … I love my sleep too much!
It seems I am prone to these “conditions” that have no cure. Until a couple of years ago, I suffered from cluster headaches (also known in some circles as “suicide headaches”, and rightly so). I used to have 3 to 4 episodes a year, some of which lasted more than a month, and I admit there were times I contemplated putting and end to it all. I spent many, many thousands of South African rands (admittedly, only a handful of dollars) trying to find a cure, but to no avail. The only thing that offered relief — and it was partial and temporary relief — was oxygen. I bought myself an oxygen tank and although it has been 2 years since my last attack, it has pride of place alongside my bed as a reminder of those ghastly times. The only time I use it now is when I overindulge on brandy and ginger ale and need something to ease the morning hangover!
I’m hoping my current condition is also a passing phase and that one night I will go to sleep and wake up 8 hours later, itch-free and refreshed and ready to face the day. I will continue to follow you to see if there isn’t some bright spark out there who can’t dream up a cure for this irritating and debilitating arm itch. If there is, that individual will be able to make plenty of moola judging by the number of people who suffer from it.
Hang in there.
Guy
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The doctors are not even a little helpful here in Canada and have only suggested creams to stop the itch which are ineffective. The itch is internal from the nerve which cannot be affected by any skin cream. I hope that you do find relief, my itching is no longer every night, I seem to have an episode around idnight, I get up and apply cold packs, and go back to a room that has been cooled as much as possible with the window open even in the Canadian very cold winters, which helps. I find if I sit in the sun, the itch is triggered so I feel for you as you live in a much much hotter climate. I am glad to hear your headaches are gone, which lets you only with one horror at a time. I am hoping something exciting will come up one day soon to cure this itching, however repairing nerve damage is not possible with a simple bandaid or drug.
You hang in there too, and keep those gel packs ready in the refrigerator.
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Thanks Maggie. All the best to you, too.
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Hello, I have same condition and looking for help too. I’ve posted on a site called medhelp.org You can search there by condition name. Here’s what I’ve posted there:
Seeking others with Brachioradial pruritus. I’m 66 and ’ve had this condition on and off for at least 15 years. I’ve had MRI’s and I have compressed nerves at C3 C4 and also some in lumbar. I’ve had these compressed nerves for 20 years. My neurologist has done all the nerve tests and they are normal. Tried Gabalentin 300 mg morning and 300 mg night, no relief. Tried expensive compounded RX creams, no help. Tried all the over-the-counter creams, no help. Acupuncture, no help. Only relief is applying ice for a long time. The itching is driving me crazy and disrupting my sleep. What have you tried?
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I will check out medhelp. I haven’t actually tried more than a few creams because everywhere I read, I see that nothing helps. The only relief is from cold gel packs. I keep them in the fridge and take them wherever I go. My dermatologist can offer no help and has not suggested anything further. He knows there is nothing he can do for me. It is nerve deterioration or compression, not sure but really, having an MRI will not benefit me. I am constantly tired, I often sit alone at 3 am, cold packs on my arms feeling blue. I think the cold on my arms has dried my skin. I have scratched until I break the skin sometimes and bleed… .. But During the day, I am usually fine because I keep active, going for hikes, and taking photos. It is when I sit down to watch a movie or go to bed, that the itching starts.
I have read that our nerves can only send one signal to the brain at a time. If we are busy, the nerves are not isolating the “itch” signal T(he haywire incorrect response)
Sometimes I just want the doctor to snip that nerve in my arm… I wonder how that would affect the feeling in the rest of my arm…
Maybe one day soon.
Meanwhile, stay positive and keep active… Try and stay so busy, that you can sleep through the itching at night.
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I have had brachioradial pruritis for about 7 years, since I’ve lived in areas with very hot summers. I believe it’s from the sun, at least in my case. Perhaps there are two causes? I use ice but also get relief (many hours!) From capsaicin cream, also there is a liquid roll-on version. It can sting and burn initially, and sometimes takes two applications, but it works. However, you must take care around babies or children, lest they touch your skin and then their eyes, etc. Long sleeves prevent this, but if it’s hot not practical. I’d like to try the lidocaine lotion soon.
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Capsaicin cream sounds too difficult (and dangerous with all the precautions,) I would be afraid to try it. I did try Lidocaine and it does deaden the skin somewhat, but I found little (and only temporary) relief from my itching. Let me know if it works for you… I hope it does.
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I feel all of your pain.. I too have been a BRP sufferer… and it had gone away for years…. until this summer. Like all of you, i’ve studied, self diagnosed, tried so many things.. RX and over the counter. Even had to go for prednisone shots years ago… I won’t do that anymore, don’t like gabapentin, don’t want to live on drugs… I had back surgery 2 yrs ago for L4/L5, and after all my years of athletics and 2 car accidents years ago, i wouldn’t doubt that my cervical isn’t messed up as well… hence the nerve damage. Ice is definitely the number one reliever, and i now have every “best healthy, organic oil out there. Coconut, jojoba, shea, almond, avocado, and now borage? never heard of it, just ordered it and tried today. Supposed to be the highest level of “gama linoleic acid, which has super high anti inflammatory effects. I can’t guarantee anything yet. I also have been using mixture of tea tree and lavender, which seem to help. But again, not a cure, just works for a while until next flare up. Have tried elimination diet as well, I live in So Cal, and not sure sun is a factor as it’s been calm for years… I’m doing acupuncture next week for it and haven’t thought of that earlier, not sure why, but hopefully she can help. I wish everyone the best and hope someone comes up with an amazing cure !
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I have been away on a holiday, so have been unable to answer. How did the acupuncture go? I hope it brings relief.
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Hi Maggie,
I have suffered since 2001 with severe itching on either or both arms, shoulders, forearms. It comes and goes. Ice packs have been the best help so far. I have tried about everything. At least there is a name for it. I sure hope a cure/remedy is found.
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me too Tracy, Mine does come and go now, I just want it to GO more often.
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Thanks for creating this site. I’ve found so little information on relief of this darned itch. Mine is usually seasonal but it’s returned in the past few days, so perhaps is is increasing. This time in a different spot too. I’m just glad that others understand how awful this is! I’m going to mix up a roller ball bottle with grape seed oil and whatever recommended essential oils I have on hand. So far, only icing it brings temporary relief.
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That is the only relief I have found, but, be careful with how cold the “ice Packs” are, I just keep my gel packs in the fridge, I think too much ice will also damage your skin.
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Hi. I live in Florida and I’m 55 years old. I have been getting this for about 3 years now. Mostly so far somewhat seasonally. Usually late July to early September then it subsides. Thank God. Every time it comes I pray for it to leave. Lately I’ve also had a lot of weakness and loss of range of motion in my arms. I’m not sure if it’s connected. I feel like I have a cervical spine problem and I work for Mayo Clinic so will be going to get that checked out in the next few months. I’ve never had an MRI so not sure if something is compressed. However mine does get worse w sun exposure ( as summer wears on). Yesterday I went for a walk in the late afternoon and my arms started burning. By the time I got home it was like a thousand hot needles in my arms. Not even itching but burning! It took me a half hour and 3 ice packs to get myself calmed down. Almost an anxiety attack. Also notably I just came off of Paxil in the last weeks so those that say Paxil may help may not be wrong. Or maybe it’s a coincidence. I came off for other reasons but if this doesn’t go away I’m going back on. To the poster about cluster headaches. My husband had those and we also discovered the oxygen cure! I took him to the ER one night ( I’m a nurse) and while waiting for the Doctor I threw some oxygen on him. His headache was gone before the Doctor even came in. It’s funny after I did all that reset for him that he thinks I’m nuts about my affliction! I’m so glad I found you all! -Wendy
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I understand the anxiety thing, I too have anxiety, and am on Paxil. It does help on those late nights when I am sitting up alone tortured by the itching.
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Hello. I’ve been suffering from this for six years, starting a couple of years after moving to Spain so I’m pretty sure the sun is the culprit. I haven’t tried the anti-depressant drugs, as one problem at a time is enough for me! Until now, ice packs have been the only source of relief. For me it is seasonal too, end of July to about October. I seem to have found something else that may be helping. I’d read that Avena sativa drops (extract from oat seed) was thought by some to be useful in helping to heal nerve damage, and so have been trying this, 30 drops in water at night. The severity of the itch does seem to be diminishing. Could be coincidence but I’m going to continue with it and see.
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will look into this… sounds promising.
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Hi. I live in Colorado and am always outside. I developed this probably 2 summer’s ago. The ice works always. I did try the arthritis creams but my arm felt like it was on fire! I have tried aloe lately and found some relief. I also have been trying arnica gel. Has anyone else tried it? It seems to subdue the itching!! I HATE HAVING IT. When I told my dermatologist what I had she scoffed and said that’s so rare nobody really gets it. I was so angry when she blew me off.
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I too use an aloe gel sometimes, It is so hard to deal with this affliction. I did find a dermatologist who at least knows about it and agreed thats what I have (I had to self diagnose) my GP had never heard of it but looked it up. He at first treated me for scabies of all things because I had been in Mexico. If she doesn’t think you have BRP, what does your dermatologist suggest that you have? Does she have an alternative?
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I wonder if this blog is still active and hope to share what I’ve learned. I’ve lived on a boat in So. CA for 22 years and of course am outside all the time in the intense sun. I can guarantee that the sun triggered mine. I say ‘trigger’ because it only starts in the summer and eases by around Sept. (this year it’s still on in October). I’ve found that Lidoderm patches give me a great deal of relief. This year I’ve had a new insurance coverage for RX’s and after hours on the phone for several days they refuse to cover it even with a prior auth. All summer I’ve suffered and tried to stay inside 24/7 but no relief except ice. Thank you to whoever invented freezers or fridges! I did try some over-the-counter 4% lidocaine patches but they’re not nearly as good as the 5% Lidoderm patch that needs a doctor’s rx. Have switched to another insurance and it looks like they’ll cover it with no ‘Prior Auth’. Help is on the way after the suffering all summer with this horrible BRP. You’d think we were in a terrorist’s torture camp.
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Torture is the word for it. Glad you get relief with lidoderm patches. I just worry about side effects. I think ice has side effects too, my skin feels so dry all the time. I go through huge amounts of cream. Must keep hydrated.
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Hi Maggie,
Ive been suffering with this for about 7 years. When it first started i saw a doctor but she didnt have a clue what is was. Its only from reading other peoples stories that i know im not going mad and there is a real reason. Mine is always in the Autumn so thought it was some sort of allergy.I just read on another site to put duct tape on the itchy area, i didnt have any but used masking tape ,wound round the tops of my arms and WOW cant believe the instant relief. Im hoping i might get some sleep tonight. Please try it, hope u will too get some relief. x
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That’s interesting. I am going to try that. I have been getting it less recently. But i know it is cyclical.
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I have suffered with this for years. I have found when my arms start to itch I immediately drink three big glasses of water. Within and hour the itching has usually subsided. When it does has not I have used ice packs. But, drinking a lot of water when I first notice the horrible itching starting is the ONLY thing that has seemed to help at all.
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This is something i think I should try. I probably don’t drink enough water. Thanks for the info.
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ok, i will try water. Water “CURES”, yes i said “Cures” many things. Thank you Maureen. I have been using very warm/ hot water topically on the area to open the pores, when the problem starts. Then i make a paste of that very warn/ hot water and “Frontier” brand powdered cayenne pepper as a paste. It stops the itch immediately, and i can sleep. I have also in the shower, been using Dr Bronners peppermint hemp, and Br Bronners Tea tree Hemp soap (these soaps are diluted-directions on the bottle as to how to dilute.–These soaps are available at health food stores and online) on those areas, and have not had the problem ?
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I found a little relief just reading the various comments to know that I am not going mad !! I know I have a little neck problem and just now and again for a few months the itch flares up. Ice packs are the only cure. No creams work for me. I live in Spain but ironically the itch does not come in the high Summer .. go figure?
However, I did find a fantastic physio who performed a very firm (unusual I know) lymphatic drainage massage and he knew all about the itchy arms. I had two hour long massages and it did work but came back after about 3 years. He has now left Spain and I am trying to locate another physio that does this type of massage and am learning how to massage my neck and face myself. Don´t understand how this helps but will try anything!! Also need to keep well hydrated but the itch is like it´s under the skin itself so completely agree that it is do with the the nerves. All the best to everyone.
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Hola,
I am using Aragon oil on my upper arm and it seems to be helping a lot. Aragon oil is from the nut of the Aragon tree in Morocco. A wonderful il for skin and hair. Also have been using a natural product called Sting Stop (found in health food stores) and that ‘s great at night. I only have it about 2 months now and it was driving me CRAZY!!!! as you all know. It also caused the skin on my upper arm to thicken. Now that I have stopped scratching (for the most part), the thickening is going away. I hope to get this under control here pretty quick as we just moved to Mexico. I have been very cavalier about sun exposure my whole life–I’m 61 now–and this is a game changer. I can feel it prickling on my other arm now and sometimes down to the wrist. I am hoping to find a chiropractor who might have some experience with this, but Mexico….we’ll see.
Thanks for all the great posts. I hope mine helps.
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I get it down to my wrist also. Where in Mexico are you? I will be in Puerto Vallarta for a month in 2019
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I find that when I eat a lot of gluten especially oats it seems to flair up only on my left arm. The itching can be maddening as many people have commented. I have had some relief using Magic mud charcoal toothpaste as a poultice (spearmint or peppermint)
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Thank you all, for this information. I stumbled upon this-thinking cayenne stops pain and bleeding–and i was willing to try anything to stop this itch. (“Electric shock of itch” stated on this site-good description) I have this also, and i have found that if i run very warm- hot water over the area for about 30 seconds (to open pores) then make a paste of organic cayenne pepper powder left to sit on the area,(Frontier Brand Cayenne is truly organic non-irradiated/non-GMO and potent). It STOPS the itch for a few days to a week. Even if i’ve ripped into the skin by itching it, and drawing blood, the cayenne does not hurt nor sting. It just stops the itch in about 20 seconds, and i go back to sleep. I can feel the heat of the cayenne in the muscle the next day in the shower, but it does not hurt. I have tried many things for this, and the cayenne as used above with the hot water first, works best. I have also felt that this is likely candida related, but i do have cervical injuries and issues, Some chiropractors are better than others. I think i will find one schooled in accupressure and the dermatomes, a true professional. They are using a capsaicin patch pharmaceutically now-that can only be “administered” by a dr. (capsacin is another name for cayenne). I will stay away from any pharmaceutical myself. I really like the idea of drinking more water, and habanero pepper juice being used as stated above, AND the idea of lymph drainage massage getting relief for 3 years–that is the best one stated here. I will try both-THANK YOU!
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Thank you for the information, I will give this a try, although, thankfully, my itching has lessened in the past months, perhaps weather related, summer is here and that seems to bring it on. I wonder about the Candida related. Would it not spread?
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So for you, It’s lessened in the past few months? I wonder what you are doing that it has lessened? I am just as confused as yourself as to what exactly this is, and your site here is the first i have heard of this BRP thing. I’ll tell you, it seems to me that stress and particularly anger, and also certain foods “seem” to make it worse? This could be related to inflammation—stress causes inflammation. I assumed it was candida related. But the cayenne, the way i use it, works and stops the itch.
I also sometimes use very warm/ hot water to open the pores, then rub borax on it, and that also stops the itch. (NOT AT THE SAME TIME WITH CAYENNE!!!!) Borax is a salt, which also supposedly kills candida/ fungus. I just don’t know, I had been under the impression that this whole issue was candida related, but because someone on this site, said that it was like an “electroshock” of itch–YES i feel that–this could possibly be nerve related. –And i have injuries/ car accidents/ damage to C 5,6, and 7. This is all very interesting. I want to speak w/ my chiropractor about this. He is a a pro, and versed in the nervous system/ body mechanics/ accupressure- this is his realm of knowledge.. I just need the time to go see him, and maybe he can help us all. I will post again after i share this with him. In the meantime, what are you doing that, you haven’t had the problem lately? Anything in the way of cutting inflammation, reducing stress/massage? to your back/ neck? better ? diet? let me know and i will share that with him also. And Thank You for sharing the information.
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When I first started to suffer, I was referred to a dermatologist (after treatment for a number of skin surface issues including scabies). He confirmed the BRP and told me it was either a deteriorating nerve or perhaps a pinched nerve in the C5 or 6 which contain the nerves for the upper surface of the arm. They still had no proof of the cause. My only defense has been cold gel packs which I keep in the fridge, not the freezer.
The only thing I can think about that may have caused a change is a fall I had. did it “unpinch” the nerve? or is it weather related? I also moved from Ontario to the BC coast where the climate is much milder. Other than that I have done nothing different.
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I have had BRP for over 20 years. I believe it is caused by compressed nerves in the cervical spine. But I have read that it seems to affect mainly middle aged white women
– not sure why that is. In any event, it started on my left forearm and the symptoms would come and go. It has gotten progressively worse and now it is from the back of my shoulders down to my fingertips on both sides. This time, it has been constant for 15 months straight with no end in sight. Since I am so sleep deprived (I am usually up until around 4 am going out of my mind) I had to quit my job. Thank God I was financially able to, or I don’t know what I would have done – it’s not like you can apply for long term disability for a condition that most doctors have never heard of or think you are imagining. I did see a neurologist who confirmed the diagnosis, but he too said there is no cure and to use ice packs. But how do you put ice packs from your shoulders to your fingertips? I keep thinking that someone should invent a long sleeved shirt with sleeves filled with ice packs. I also take Gabapentin which takes the edge off during the day but doesn’t help at night. I also tried hydroxyzene but it didn’t help with the itch, it only made me feel stoned. Vics Vaporub can be soothing. Thanks for the blog – it is reassuring to know that I am not the only one suffering.
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There seems to be a lot of us… I have been sticking my whole arm under running cold water.. the water runs down my arm from my shoulder to my wrist and it does give me relief for a while. I like it because it covers a greater area that a cold pack.
I find the skin on my arms has been affected from all the cold… mild frost bite?
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My derm. Recommended Sarna Cream and it helps me as it has menthol in it.
A little history: I’m 49year old female living in San Diego (southern Ca.). I do have a history of being in the sun. I have a little freckle in my skin tone naturally. I have had BR for at least 12 years and it used to be very infrequent but, over the last 2-3 years it’s become somewhat regular. I wonder if this is due to the fact that I weigh more than I’ve every weighed but, not obese by all means- 5”9 and about 20lbs overweight. Since my early 20’s, I had lower back pain and used to see a chiropractor for the low back pain somewhat regularly, until I realized that I just need to keep stretching my hip flexor muscles. I have never been in an accident to have nerve damage. I do have neck pain; especially in the morning. I sleep on my stomach with my neck sort of to the left which is the only way I can fall asleep. The only other health issue I have is Hashimoto’s Thyroiditis, an autoimmune issue.
Things that have helped me: Ice packs, Sarna cream. I am going to look into chiropractic care again, natural anti inflammatory supplements and try to do stretching for my neck. If anyone has found a cure please feel free to email as I would not think or have time to check this blog often. Rachelcrivelli1971@gmail.com
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Hi there. John. 39. I thought I was crazy until I read all this. It has gotten bad enough that I finally searched for a cure. I wake up constantly to apply anti itch gel. It works for a few moments. Then I meditate. And try not to itch. I also get poison ivy extremely bad when exposed, so I’ve been through similar sensations. I live in Florida, work and play outside constantly. And recently I did get a little too much sun. So that does explain the recent flare up. Thank you everyone for the remedies. Currently making a cayenne paste. Also trying that Biofreeze stuff. Might try acupuncture. Might gnaw my own arms off
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I have tried everything under the sun to relieve BRP but recently ordered a Project E Beauty Ice Roller Massager that gives me some relief ($19.95 from Amazon).
On Wed, Sep 22, 2021 at 7:18 PM The Eye of a Thieving Magpie wrote:
> John commented: “Hi there. John. 39. I thought I was crazy until I read > all this. It has gotten bad enough that I finally searched for a cure. I > wake up constantly to apply anti itch gel. It works for a few moments. Then > I meditate. And try not to itch. I also get poison ” >
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sounds interesting, I will check it out.
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I found mild C5/C6 and C6/C7 disc osteophyte from an MRI 8 years ago and BRP a year ago. Living, work, sleep are now a daily challenge without ice or gabapentin. I hope in a couple of months to do another scan and if nerve root compression is found I would know if surgery is a consideration. My wife is against surgery because of paralysis risk. At that time I will be between itching and risky surgery. And Magpie!
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For a 2021 update on BRP there are new therapies like Duplixent, also pain management options like cortisone injections in your neck after you have had an MRI. will be trying both of these methods but what has kept me sane through many bad flare ups on my arms is valium. I can take 5mg. and get relief within ten minutes. If it is a really horrible fare up I take 10 mg valium. My outbreaks last for about 8 weeks off and on. I take abilify and something called Liver X during this period and those both help ease the worsening of the outbreaks. It is exhausting, depressing, and does affect the quality of my life.
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I am so happy to stumble upon this site. This sounds exactly what I have been experiencing for the last 2 months. It interrupts every night of sleep for me. I recently moved to a much warmer and sunnier climate so I think this my be part of the problem although I do use a very high SPF (mineral based). There are some really great long sleeve spa shirts on the market and I wear those when I am out in the yard or working in the garden. I use fresh Aloe Vera leaves, take off the spikes on the sides and about an inch from the top, you have to rinse them under the tap to get the yellow slime (called latex) off of it. Too much of the latex can be harmful but you can leave it on as it will provide relief from constipation (but leaving the yellow on gives cramps too). I slather my arms, shoulder and upper back and neck with the Gell then stick them in a bag in the freezer. What a glorious relief to use them straight from the freezer and the gel is plentiful, just slice off the top layer (slightly) to reveal lots more gel and it will las a long time. I also use Vicks Vapor Rub before I go to bed which seems to help me sleep. I believe it is a combo of the sun, compressed nerves, and in my case chemo and radiation 10 yrs ago that can trigger this also. I am using a ceiling suspended yoga sling to help stretch out my back. I started to bounce for 20 minutes before bedtime on my rebounder (mini-trampoline) as I used this to drain my lymphatic system when recovering from cancer. I am doing this before bed in the hopes it will help me sleep, stitch out my back and neck and drain my lymphatic system. I truly appreciate this thread and have taken a lot from it to try. I also think the liver over burdened with heavy metals and toxins doesn’t help either so I am going to start the “Medical Medium’s 3:6:9 cleanse for 9 days and see if I can give my liver and whole body a boost. This is an awful condition. I have only had it a couple of months and can’t imagine a life with it. I would prefer to find a natural remedy and will try the apple cider vinegar as well. Thank you, be well and blessings to all.
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I too love Aloe Vera… I must start to grow my own. I have come to live with the constant itching… I still swear by the cold gel packs. They do a great job in calming my itchy arms and ankles.
I am now burdened with burning feet and have been checked for diabetes, thyroid and vitamin deficiencies… another unsolved mystery.
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Kimmee, Scrolll up to read post by Renae. June 19, 2019. I used this cayenne as described in that post. It works. Now Over time, this BRP has basically gone away. I have since learned that cayenne not only stops itch and pain, but it heals nerve damage. That is why pharma has co-opted cayenne and made it into a pharmaceutical with a chemical change, so as to patent it, for BRP. Some people on this site earlier have spoken about that pharmaceutical. Why anyone would use a pharmaceutical that always has side effects, (b/c it’s a chemical), is beyond my understanding. we all need relief, with NO “side effects.” Best to you.
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Hi.
I have been going for GUNN needling treatments.
Although it does not cure the condition, it does help with the symptoms.
I have gone up to 9 months with no itching, or sensations
You need to reach out to a physio therapist who certified in “GUNN needling” technique. It is also referred to as dry needling in some areas
Good luck
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I just found out I have it too and I am using Castor oil, it works instantly.
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I’ve had a break from the itch for a couple of years, but it has returned. I tried some Manuka honey, and it stopped for a bit, but seems to come back after it’s washed off. I gave some to a friend with the same symptoms, and she too says it stops the itch. I use a very small amount and keep rubbing it in until it feels more rubbery than sticky. Anything is worth a try at this point, and this one is natural and easy!
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I guess different things work for different people. I tried the Cayenne pepper that someone in this thread recommended and it didn’t work for me at all. But I will try the honey!
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I’ve been taking Gabapentin for a few years now, and it stopped the horrendous itch that I suffered from for over 3 years. It not only stopped the itch completely, it also stopped my Restless Leg Syndrome, which was a wonderful “side effect.”
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